So.. as previously mentioned.. Machine Man took a new JOB.. a NEW POST..
with the EXTRA time he has at home, we are attempting to PUT things in order…
when you work oooodles of hours.. and spend all your spare time …let’s rephrase that.. and have NO spare time to speak of,
but are raising 4 lovely blessings
all who have wonderful and unique needs..
physically, health wise, and intellectually.. (they talk their little faces off at all they learn at school… o MY!)
when you come home exhausted, and eat and fall asleep
only to do it all again & again and again
with mounting visits to LLMD’s and fancy specialists in this and that
and therapists for this and that…
and bills for all of THAT
and a house that you own, and has THIS and THAT that needs repairing
and a car or two that needs repairing,
things can get…
BUSY… things CAN become.. messy.. misplaced.. out of ORDER..
out of ORDER by definition in our home being… not in their customary WAY of being..
so now.. that he’s home.. a wee bit more..
we are trying to PUT things back IN ORDER
like organizing those medical bills…
sorting… who we owe… and who just didn’t bill correctly
who needs to ACTUALLY resubmit to our insurance
Calling all these people and figuring out WHO is owed WHAT
can look different that the WHAT they SAY that YOU owe them…
JUST ask your insurance people.. JUST take a second to look at your Insurance claim
The Bible says that the borrower is a SLAVE to the Lender..
and we FEEEEEEEL very much ….
and it sucks!
that said…We want to be FREE!
FREE from this captivity!
we got the DAVE RAMSEY book… TOTAL MONEY MAKEOVER…
to help us in our wee little financial crisis.. ;
we are way pumped about getting out of this “medical debt”….
Dave is SUPER helpful, and very wise about finances.. we hope to pay EACH and every lab, doctor, radiologist, hospital, blah, blah blah & blah back as SOOOOON as possible! and in an orderly fashion too… We are doing everything we can think of… From picking up pennies we see on the street and collecting them, to prepping to have a garage sale as SOON as the weather is warm..
IF I WAS super cool.. I would have figured out EBAY by now..
c’est la vie… I am still not that cool..
perhaps… some day!
Meanwhile we are taking steps.. each day, to sort, organize, call, follow up with, save, send,
PRAY, PRAY and PRAY some more and
are in general
working towards putting things IN order..
it isn’t going to happen in a day..
we didn’t get here overnight
and unfortunately we still have more medical needs…
But God IS faithful.. and HE is seeing us through this all…
what about you??
Have things in your world gotten.. dare i say it.. a bit.. messy.. disheveled? out of .. order?
what proactive steps are YOU taking THIS season of YOUR life to RECLAIM it… to PUT Right that which is gone wrong..?
what are YOU going to do to put things back…
funny terms you might find here
LL - Lyme Literate
LD - Lyme Disease
LLMD- Lyme Literate Medical Doctor
HERX- Herxheimers Reaction... a taste of hell on earth.. basically your body experiencing the die off of the disease, and needing to detox... there can be good herx's and bad ones... one friend I met said we ought to call them hex's because they feel like a curse (giggle)
Good Day- a functioning day rather than one that is NON functioning.. this isn't a normal persons "good day".. it's a different good.. it's a day we didn't need a ton of pain meds, didn't go to the ER, and were perhaps able to do our life, in a reasonable way with some joy
Bad Day - you don't really want to know, as these can be really awful
IV abx- Interveneous antibiotics
Probiotics - much needed to resupply our bodies of much needed healthy bacteria because all the antibiotics are killing off the good as well as the bad in our bodies
dysgraphia - a disorder that causes handwriting pain and difficulties, in our case caused by bartonella
bartonella- aka BART-nasty little co-infection to Lyme ... only 2 of the 17 strains are tested for, so hard to detect except for by observing symptoms
babesia-aka BABS- horrible little co-infection, sort of the "american" version of malaria.... not so fun
HHV6 - Human Herpes Virus 6- another wonderful and annoying, yet quite common co-infection to Lyme
Epstien Barr - yep another co-infection
Mycroplasma Fermentens - horrible nasty co-infection, also known for "Gulf War syndrom"... no it's NOT all in their heads
Five Lymies & a Baby.. Who are WE?We are a Family stumbling after our Savior Jesus. Five of us have Lyme disease, and Baby with his own allergies seems quite fine. We are real people, with real struggles, real joys, real challenges, and real triumphs... As a Family, we are trying to learn together. Learning about diet, and how it can help us or hurt us as we battle this disease. Learning about co-infections, organics, growing our own foods, cooking our own foods, buying locally grown foods, buying affordable supplements, how to buy medicine affordably.. Really there is so very MUCH we are learning about as we venture through this plight.. We hope to walk honestly, to stick to our Savior and one another through the thick and thin of this... in the midst of a harsh economy, trying to sell our home... selling our stuff to raise money to buy medicine... as Mama of the clan, I feel confident many of my readers can relate, or at least grasp where we are coming from... Welcome to OUR little corner of cyber space! :)