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funny terms you might find here
LL - Lyme Literate
LD - Lyme Disease
LLMD- Lyme Literate Medical Doctor
HERX- Herxheimers Reaction... a taste of hell on earth.. basically your body experiencing the die off of the disease, and needing to detox... there can be good herx's and bad ones... one friend I met said we ought to call them hex's because they feel like a curse (giggle)
Good Day- a functioning day rather than one that is NON functioning.. this isn't a normal persons "good day".. it's a different good.. it's a day we didn't need a ton of pain meds, didn't go to the ER, and were perhaps able to do our life, in a reasonable way with some joy
Bad Day - you don't really want to know, as these can be really awful
IV abx- Interveneous antibiotics
Probiotics - much needed to resupply our bodies of much needed healthy bacteria because all the antibiotics are killing off the good as well as the bad in our bodies
dysgraphia - a disorder that causes handwriting pain and difficulties, in our case caused by bartonella
bartonella- aka BART-nasty little co-infection to Lyme ... only 2 of the 17 strains are tested for, so hard to detect except for by observing symptoms
babesia-aka BABS- horrible little co-infection, sort of the "american" version of malaria.... not so fun
HHV6 - Human Herpes Virus 6- another wonderful and annoying, yet quite common co-infection to Lyme
Epstien Barr - yep another co-infection
Mycroplasma Fermentens - horrible nasty co-infection, also known for "Gulf War syndrom"... no it's NOT all in their heads
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Five Lymies & a Baby.. Who are WE?
We are a Family stumbling after our Savior Jesus. Five of us have Lyme disease, and Baby with his own allergies seems quite fine. We are real people, with real struggles, real joys, real challenges, and real triumphs... As a Family, we are trying to learn together. Learning about diet, and how it can help us or hurt us as we battle this disease. Learning about co-infections, organics, growing our own foods, cooking our own foods, buying locally grown foods, buying affordable supplements, how to buy medicine affordably.. Really there is so very MUCH we are learning about as we venture through this plight.. We hope to walk honestly, to stick to our Savior and one another through the thick and thin of this... in the midst of a harsh economy, trying to sell our home... selling our stuff to raise money to buy medicine... as Mama of the clan, I feel confident many of my readers can relate, or at least grasp where we are coming from... Welcome to OUR little corner of cyber space! :)Typical Topics
Tag Archives: easter
Those incredible EDIBLE eggs….
yes… lovely.. artistic.. and a beautiful reminder.. of our NEW creation in Christ.. OF the Trinity.. of The Resurrection… hey… i promised to post pictures 🙂
Five Lymies & a Baby 